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Paeds Casescardiology

Paeds Cases · cardiology

Counsel parents of a newborn with a suspected duct-dependent cardiac lesion — OSCE

OSCE communication and shared-planning station: explaining to the parents of a newborn found to have a low saturation on pulse-oximetry screening the meaning of the finding, the immediate plan to start prostaglandin E1 and transfer to a cardiac centre before the echocardiogram, and the honest framing of prognosis while addressing fear.

osce communication and shared decision-making
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Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
The parents of a thirty-hour-old term infant, found on the postnatal ward to have a pulse-oximetry of 86 per cent in air while looking well, are frightened and bewildered. They have been told their baby needs a drip of a drug they have never heard of and transfer to a city cardiac centre before a scan has even been done. They do not understand why their baby looks well yet is being treated as an emergency. Counsel them.

Candidate brief

You have eight minutes to counsel the parents of a thirty-hour-old term infant found on routine pulse-oximetry screening to have a saturation of 86 per cent in air while looking well. The plan is to start a prostaglandin infusion and transfer to a cardiac centre before the echocardiogram. Use a structured, honest and empathic approach that explains the finding in plain language and builds a shared plan. [2] [1]

Key teaching and communication objectives

Acknowledge and validate the parents' fear and bewilderment before delivering information, and allow silence. Explain in plain language that the low oxygen reading means their baby's blood is not being oxygenated as it should, that this can be caused by the way the heart's plumbing formed, and that the baby looks well now because a small vessel called the ductus is still open and doing the work — but that vessel naturally closes in the first days of life, which is why this is being treated as urgent even though the baby looks comfortable. [2]

Address the drug and the transfer directly. Explain that the prostaglandin infusion keeps that small vessel open and gives the team time to image the heart and plan the repair, that it is started before the scan because waiting risks the vessel closing, and that the transfer to the cardiac centre is arranged with specialists who will take over the care. Name the side-effect that matters most — that the drug can slow the baby's breathing, which is why the airway will be watched and, if needed, supported for the journey. [9] [8]

Frame the prognosis honestly. Explain that most of these lesions can be repaired and that the reason for the urgency is to reach that repair safely rather than in a collapse, and that the screening programme exists precisely to catch this early. Avoid false certainty about the exact diagnosis before the scan, but offer the honest reassurance that early detection is exactly what gives the best chance of a good outcome, and that the team will update them as soon as the heart is imaged. [1]

Close with a shared plan and a clear next step: the infusion and the transfer, the name of the receiving team and the coordinator, a connection to cardiac family support, and an open invitation to ask questions and to be with their baby wherever possible. Confirm understanding, check the family's practical needs for the journey, and document the conversation. [2] [8]

References

  1. [2]Mahle WT, Newburger JW, Matherne GP, et al. Role of pulse oximetry in examining newborns for congenital heart disease: a scientific statement from the American Heart Association and American Academy of Pediatrics. Circulation, 2009.PMID 19581492
  2. [1]de-Wahl Granelli A, Wennergren M, Sandberg K, et al. Impact of pulse oximetry screening on the detection of duct dependent congenital heart disease: a Swedish prospective screening study in 39,821 newborns. BMJ, 2009.PMID 19131383
  3. [8]Aykanat A, Yavuz T, Özalkaya E, et al. Long-Term Prostaglandin E1 Infusion for Newborns with Critical Congenital Heart Disease. Pediatr Cardiol, 2016.PMID 26260095
  4. [9]Vari D, Xiao W, Behere S, et al. Low-dose prostaglandin E1 is safe and effective for critical congenital heart disease: is it time to revisit the dosing guidelines? Cardiol Young, 2021.PMID 33140712