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Paeds Casesprofessional-practice-and-evidence

Paeds Cases · professional-practice-and-evidence

Family-centred and child-rights-based care — OSCE

Communication and management OSCE station: delivering a family-centred, rights-based encounter with a child with special health care needs and a family who speak a language other than English.

osce communication and management station
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Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
A 9-year-old with a complex chronic illness is admitted for investigation; the parents speak a language other than English, ask you to tell them but not the child, and the child is drawing quietly and unconsulted.

Objectives

  1. Deliver the four PFCC core concepts and uphold the four UNCRC guiding principles in a real encounter. [1] [5]
  2. Arrange a professional interpreter and avoid using the child or a sibling as interpreter. [9]
  3. Elicit the child's own view at a developmentally right level and record it. [12]
  4. Manage the tension between a family's wish to withhold information and the child's right to accessible information. [5]

Candidate brief

A 12-minute station. A 9-year-old with a complex chronic illness is admitted for investigation. The parents speak a language other than English and ask you to tell them about the plan but "not to worry" the child. The child is drawing quietly in the corner and has not yet been addressed. The nurse asks you how you will run the conversation. [1]

Expected actions

  • Greet the child by name first, before turning to the parents; acknowledge the child as a person with a voice. [12]
  • Arrange a professional interpreter for the substantive conversation; do not use the child or a sibling as interpreter. [9]
  • Explore why the parents wish to withhold information, usually fear, and offer to share age-appropriate honest information with the child together with the parents. [5]
  • Use plain language, invite questions, and check understanding with teach-back. [1]
  • Ask the child directly, in concrete terms, what she understands and what matters to her; weight her view to her developmental stage. [6]
  • Build the plan collaboratively with the family around their goals, and record the child's own views in the notes. [1] [12]
  • Document who decided, the information shared, the interpreter used, and the follow-up. [10]

Examiner prompts

  • "We don't want her to know — she'll only get upset." → Explore the fear; offer to share age-appropriate honest information together; name the information-sharing core concept. [5]
  • "Can't her older brother just translate?" → Decline; arrange a professional interpreter for high-stakes information. [9]
  • "She's just a child, she doesn't need to decide." → Reframe: participation is weighted to her stage, not a transfer of decision-making; record her view. [12]

Marking foci

  • Demonstrates the four PFCC core concepts and four UNCRC guiding principles in action. [1] [5]
  • Arranges a professional interpreter and avoids using a child as interpreter. [9]
  • Greets the child first, elicits her view directly, and records it. [6] [12]
  • Manages the withholding-information tension without silencing the child or the family. [5]
  • Documents who decided, information shared, interpreter used, and follow-up. [10]

References

  1. [1]COMMITTEE ON HOSPITAL CARE, INSTITUTE FOR PATIENT- AND FAMILY-CENTERED CARE Patient- and family-centered care and the pediatrician's role. Pediatrics, 2012.PMID 22291118
  2. [5]Goldhagen JL, Shenoda S, Oberg C, Mercer R, Kadir A, Raman S Rights, justice, and equity: a global agenda for child health and wellbeing. Lancet Child Adolesc Health, 2020.PMID 31757760
  3. [6]Quaye AA, Coyne I, Söderbäck M, Hallström IK Children's active participation in decision-making processes during hospitalisation: An observational study. J Clin Nurs, 2019.PMID 31430412
  4. [9]Shields L, Nixon J Hospital care of children in four countries. J Adv Nurs, 2004.PMID 15009350
  5. [10]O'Connor S, Brenner M, Coyne I Family-centred care of children and young people in the acute hospital setting: A concept analysis. J Clin Nurs, 2019.PMID 31099444
  6. [12]Alderson P, Sutcliffe K, Curtis K Children as partners with adults in their medical care. Arch Dis Child, 2006.PMID 16399782