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Paeds Casesprofessional-practice-and-evidence

Paeds Cases · professional-practice-and-evidence

Goals-of-care conversation OSCE — adolescent oncology and a child with no plan

Observed communication encounter testing a structured goals-of-care conversation using the Serious Illness Conversation Guide, age-appropriate advance care planning, prognostic disclosure, documentation, and management of a family who wants everything.

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Target exams

RACP General PaediatricsRACP DCEMRCPCH ClinicalRCPSC Pediatrics

Target exams

RACP General PaediatricsRACP DCEMRCPCH ClinicalRCPSC Pediatrics
Prompt
Station A is a 15-year-old with relapsed leukaemia and her parents, seen to establish a goals-of-care plan. Station B is the parents of a technology-dependent 7-year-old with severe neurodisability who say they want everything done and have no documented plan.

Station objectives

  1. Run a structured goals-of-care conversation using the Serious Illness Conversation Guide (set up, assess, share, align, plan). [1] [2]
  2. Capture a developmentally able adolescent's voice with an age-appropriate tool. [3] [11]
  3. Share honest prognosis with compassion and respond to emotion. [8]
  4. Document and disseminate a usable advance care plan. [1] [12]

Candidate brief

You are the paediatric registrar in an oncology and complex-chronic service. You have 12 minutes for Station A and 12 minutes for Station B. Examiners score process, structure and synthesis over encyclopaedic recall. [1] [2]

Station A — Adolescent with relapsed leukaemia

Setup: A 15-year-old with relapsed leukaemia attends with her parents. She is developmentally able to take part. There is no documented goals-of-care plan. The family asks what would happen if treatment stops working. [3]

Expected actions:

  • Set up: warn the family a conversation is coming and ask permission to talk honestly. [2]
  • Assess: elicit what they know, how much they want to know, and what matters most to them and to the adolescent. [8]
  • Share: give honest prognosis in plain language and respond to emotion. [8]
  • Invite the adolescent directly and use Voicing My CHOiCES or family-centred ACP to capture her voice. [11]
  • Align and plan: agree the goals-of-care frame, record treatments wanted and not wanted, resuscitation status, preferred place of care, and a review date. [1]

Station B — Technology-dependent child, parents who want everything

Setup: Parents of a technology-dependent 7-year-old with severe neurodisability and repeated admissions. There is no documented plan. They say they want everything done. [8]

Expected actions:

  • Reassure the family that a comfort frame is not abandonment and separate comfort from giving up. [1] [8]
  • Explore the child's values and baseline quality of life with the parents as expert surrogates. [9]
  • Weigh the burden of each intervention against its realistic benefit and anchor the plan in best interests. [1]
  • Agree and document the goals-of-care frame and convert it to a portable, disseminated order with a review date. [1] [12]

Marking anchors

Clear pass: five-step structure, honest prognostic disclosure with empathic response, adolescent's voice captured, goals-of-care frame named, documented and disseminated plan with a review date. [1] [3] Borderline: correct facts but no values elicitation, prognosis avoided, or an order recorded without an underlying goals-of-care frame. [8] Fail: avoids prognosis entirely, excludes the developmentally able adolescent, records an isolated resuscitation order with no conversation, or fails to disseminate the plan so it cannot be found at a crisis. [1] [12]

Debrief pearls

  • Goals of care is the frame; the order flows from it, never the other way round. [9]
  • Honest disclosure does not cause depression or remove hope — the evidence supports planning early. [8] [11]
  • A plan that cannot be found at a crisis is no plan. [12]

References

  1. [1]Rapoport A Goals of care conversations and advance care planning for paediatric patients living with serious illness. Paediatr Child Health, 2024.PMID 39539786
  2. [2]DeCourcey DD, Bernacki RE, Nava-Coulter B, Lach S, Xiong N, Wolfe J Feasibility of a Serious Illness Communication Program for Pediatric Advance Care Planning. JAMA Netw Open, 2024.PMID 39058485
  3. [3]Needle JS, Friebert S, Thompkins JD, Grossoehme DH, Baker JN, Jiang J, Wang J, Lyon ME Effect of the Family-Centered Advance Care Planning for Teens with Cancer Intervention on Sustainability of Congruence About End-of-Life Treatment Preferences: A Randomized Clinical Trial. JAMA Netw Open, 2022.PMID 35819787
  4. [4]Thompkins JD, Needle J, Baker JN, Briggs L, Cheng YI, Wang J, Friebert S, Lyon ME Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT. Pediatrics, 2021.PMID 33958436
  5. [8]Bennett HE, Duke S, Richardson A Paediatric advance care planning in life-limiting conditions: scoping review of parent experiences. BMJ Support Palliat Care, 2023.PMID 37201934
  6. [9]Loeffen EAH, Tissing WJE, Schuiling-Otten MA, de Kruiff CC, Kremer LCM, Verhagen AAE Individualised advance care planning in children with life-limiting conditions. Arch Dis Child, 2018.PMID 29127099
  7. [11]Wiener L, Bedoya S, Battles H, Sender L, Zabokrtsky K, Donovan KA, Thompson LMA, Lubrano di Ciccone BB, Babilonia MB, Fasciano K, Malinowski P, Lyon M, Thompkins J, Heath C, Velazquez D, Long-Traynor K, Fry A, Pao M Voicing their choices: Advance care planning with adolescents and young adults with cancer and other serious conditions. Palliat Support Care, 2022.PMID 35876450
  8. [12]Linane H, Tanjavur B, Sullivan L A scoping review of guidelines and frameworks for advance care planning for adolescents and young adults with life-limiting or life-threatening conditions. Palliat Med, 2024.PMID 38600067