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Paeds Casespain-palliative-and-end-of-life-care

Paeds Cases · pain-palliative-and-end-of-life-care

Hold the goals-of-care conversation for grief, bereavement and sibling support — OSCE

OSCE communication station for grief, bereavement and sibling support: open the conversation, explore understanding, make a clear recommendation, address fear of abandonment, and agree a documented plan.

osce communication and shared decision-making
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Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
A twelve-year-old girl has just died at home from progressive neurodisability. Her parents are numb; her eight-year-old brother has become withdrawn and is refusing school. The community team asks how to structure bereavement care.

Candidate brief

You have eight minutes to open a goals-of-care conversation with the family in this scenario. Explore their understanding, hopes and worries; explain the clinical recommendation in plain language; address fear of abandonment; and agree next steps including documentation and support. [1][2]

Key teaching and communication objectives

Start with listening. Ask what the family already understands and what they are most afraid of. Name the clinical situation honestly without jargon. Make a clear recommendation grounded in the child's best interests rather than asking the parents to choose from an unsupported menu. [1]

Explain that limiting non-beneficial life support is not the same as stopping care. Symptom control, presence and dignity intensify. Invite questions, allow silence, and check back for understanding. If disagreement remains, explain second opinion and ethics pathways without threatening abandonment. [1][2]

Close with a concrete plan: who will do what by when, which treatments continue, which are limited, how symptoms will be treated, how siblings will be supported, and when you will meet again. [2]

Marking domains

Suggested marking domains (formative)
  1. Rapport and exploration of understanding
  2. Clear best-interests recommendation
  3. Distinction between limiting life support and withdrawing care
  4. Shared plan and documentation
  5. Family and sibling support / escalation if disagreement
[1]

References

  1. [1]Yuste Segarra M et al. Grieving in the shadows: A systematic review of invisible losses in siblings of pediatric cancer patients. Death Stud, 2026.PMID 42054273
  2. [2]Hussain H et al. Exploring challenges and opportunities in paediatric bereavement care: a qualitative study from a tertiary care hospital in Pakistan. BMC Palliat Care, 2026.PMID 41851707
  3. [3]Jolly A et al. Being broken: A qualitative study exploring unexpected death in the Paediatric Intensive Care Unit and the family experience of care. Aust Crit Care, 2026.PMID 41512802
  4. [4]Bylund-Grenklo T et al. Acute and long-term grief reactions and experiences in parentally cancer-bereaved teenagers. BMC Palliat Care, 2021.PMID 34044835