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Paeds Casesrheumatology-musculoskeletal-and-sports

Paeds Cases · rheumatology-musculoskeletal-and-sports

Counsel an adolescent and her parent on a new scoliosis diagnosis and the bracing plan — OSCE

OSCE communication and shared-decision station: explaining a new diagnosis of a 32-degree adolescent idiopathic scoliosis to a 12-year-old girl and her parent, outlining the bracing plan and the follow-up in plain language, addressing the fear of surgery and the worry about the appearance and the activities, and agreeing on the brace wear through the remaining growth with the safety-net review.

osce communication and shared decision-making
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Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
A 12-year-old girl and her mother attend the clinic after the school nurse noted a rib hump. The standing radiograph shows a 32-degree right thoracic curve, Risser 0, a typical painless idiopathic curve. The mother is anxious that her daughter will need an operation and will be restricted from sport, and the girl is worried the brace will show under her clothes and that she will look different from her friends. Counsel them on the diagnosis and the plan.

Communication framework

Establish what the girl and the mother already understand and fear. Ask them to tell you, in their own words, what they know so far and what they are most worried about. The mother's fear of an operation and the restriction from sport, and the girl's worry about the appearance of the brace and being different from her friends, are the concerns you will spend the most time addressing, and you address them with plain language and with the evidence of why the brace now gives her the best chance of avoiding the surgery. Hear them before you explain anything. [2]

Explain the diagnosis in plain language, without jargon. Tell them that the girl has a curve in her spine — a scoliosis — and that it is the common, painless type that appears in the adolescent growth spurt, with no underlying cause (which is reassuring). Translate the radiograph: the curve measures 32 degrees, and because she still has a lot of growing to do (the Risser 0 maturity), the curve is at risk of progressing during the growth spurt. Check their understanding by asking them to repeat back the key idea — the curve is real, it is the common type, and the goal is to stop it getting bigger while she grows. [2]

Address the surgery fear directly and honestly. An operation is not needed now. Surgery is reserved for the larger curve of 45 to 50 degrees or more, and the whole point of the brace is to keep her curve below that threshold while she finishes growing. The BrAIST trial — the study that established the benefit of the brace — showed that bracing raised the chance of the curve staying below 50 degrees to 72 percent, against 48 percent with observation alone, with a number needed to treat of 3. Frame the brace as the treatment that gives her the best chance of avoiding the surgery, and acknowledge that the surgery remains an option only if the brace does not hold the curve. [1] [9]

Outline the brace and the follow-up. The brace is a custom-fitted orthosis worn under the clothes, full-time for the prescribed hours (commonly 18 to 23 hours a day) through the remaining growth, with the orthotist adjusting it as she grows and the physiotherapist teaching the scoliosis-specific exercises as an adjunct. The standing radiograph is repeated at 4 to 6 month intervals to track the curve, and a curve that holds steady is on track. The return to sport and activity is encouraged — the brace comes off for sport and showering — and the modern brace is designed to be discreet under the clothing. The safety-net is the instruction to return if the pain, any new symptoms, or a problem with the brace arises. [9] [1]

Invite questions, confirm the shared decision, and close the loop. Ask whether they have any questions, address the specific fears they raised at the start — the appearance, the sport, the operation — and confirm the plan. Document the discussion, ensure they have a named team member and an orthotist and a physiotherapist contact, and arrange the follow-up. The family that feels heard, informed, and supported is the family that keeps the girl on the brace through the months of growth, and the communication is as much a part of the management as the orthosis. [1] [2]

References

  1. [1]Weinstein SL, Dolan LA, Wright JG, Dobbs MB. Effects of bracing in adolescents with idiopathic scoliosis. N Engl J Med, 2013.PMID 24047455
  2. [2]Weinstein SL, Dolan LA, Cheng JCY, Danielsson A, Morcuende JA. Adolescent idiopathic scoliosis. Lancet, 2008.PMID 18456103
  3. [9]Negrini S, Donzelli S, Aulisa AG, et al. 2016 SOSORT guidelines: orthopaedic and rehabilitation treatment of idiopathic scoliosis during growth. Scoliosis Spinal Disord, 2018.PMID 29435499