Paeds Cases · professional-practice-and-evidence
Shared decision-making and assent OSCE — imaging choice and chronic-disease disagreement
Observed communication encounter testing shared decision-making, assent, decision-aid use, capacity assessment and management of disagreement with an adolescent.
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Target exams
Station objectives
- Diagnose a preference-sensitive decision and run a three-talk shared decision-making conversation. [4]
- Distinguish consent, assent and shared decision-making at the bedside. [1]
- Use a validated decision aid appropriately as a tool, not a substitute for the values conversation. [9] [11]
- Assess an adolescent's decision-specific capacity and manage disagreement constructively. [5]
Candidate brief
You are the paediatric registrar in an acute assessment area. You have 12 minutes for Station A and 12 minutes for Station B. Examiners score process, structure and synthesis over encyclopaedic recall. [4] [1]
Station A — Minor head injury imaging
Setup: Parent and well-appearing 5-year-old. No imaging-rule trigger. Parent is anxious and asks for a scan. [9]
Expected actions:
- Team talk: name that a decision has arrived (observe versus scan) and offer a partnership role. [4]
- Option talk: present observation and CT with honest benefits, harms and uncertainties in plain language. [9]
- Use or summarise the validated head CT choice decision aid; explain it reduced CT use without missed injuries. [9] [11]
- Decision talk: elicit the parent's values, check understanding with teach-back, agree a choice. [4]
- Seek simple age-appropriate assent from the child; give a concrete safety-net and review plan. [1] [10]
Station B — Adolescent biologic disagreement
Setup: Competent 15-year-old with inflammatory bowel disease, parent present. She wants diet alone and is wary of the biologic the team recommends. [5]
Expected actions:
- Assess decision-specific capacity using the mature-minor standard and document it. [1] [2]
- Elicit her values (control, body image, fear of injections) and her parents' values (disease control, future risk) without dismissing either. [4] [5]
- Offer a values-concordant option such as a time-limited trial of optimised therapy with defined review criteria. [4]
- Document dissent if she refuses a recommended life-preserving option; escalate to ethics, second opinion and the local legal pathway. [1]
Marking anchors
Clear pass: three-talk structure, consent-versus-assent clarity, appropriate decision-aid use, capacity assessment, values elicitation, documented plan. [4] [9] Borderline: correct facts but no values elicitation, or a single-option presentation presented as shared. [5] Fail: pretends there is only one option, ignores the child's view, demands assent in an emergency, or fails to escalate a life-saving refusal. [1] [9]
Debrief pearls
- A decision aid is a tool, not the conversation. [9] [4]
- Assent is a separate good from consent; record the child's view, including dissent. [1] [10]
- In an emergency, implied consent governs; explain and seek assent once stable. [1] [3]
References
- [1]COMMITTEE ON BIOETHICS Informed Consent in Decision-Making in Pediatric Practice. Pediatrics, 2016.PMID 27456514
- [2]Katz AL Informed Consent in Decision-Making in Pediatric Practice. Pediatrics, 2016.PMID 27456510
- [3]Levetown M, American Academy of Pediatrics Committee on Bioethics Communicating with children and families: from everyday interactions to skill in conveying distressing information. Pediatrics, 2008.PMID 18450887
- [4]Wyatt KD, List B, Brinkman WB, Prutsky Lopez G, Asi N, Erwin P, Wang Z, Domecq Garces JP, Montori VM, LeBlanc A Shared Decision Making in Pediatrics: A Systematic Review and Meta-analysis. Academic pediatrics, 2015.PMID 25983006
- [5]Dodds CM, Britto MT, Denson LA, Lovell DJ, Saeed S, Lipstein EA Physicians' Perceptions of Shared Decision Making in Chronic Disease and Its Barriers and Facilitators. The Journal of pediatrics, 2016.PMID 26817588
- [9]Hess EP, Homme JL, Kharbanda AB, Tzimenatos L Effect of the Head Computed Tomography Choice Decision Aid in Parents of Children With Minor Head Trauma: A Cluster Randomized Trial. JAMA network open, 2018.PMID 30646167
- [10]Quaye AA, Coyne I, Soderback M, Hallstrom IK Children's active participation in decision-making processes during hospitalisation: An observational study. Journal of clinical nursing, 2019.PMID 31430412
- [11]Skains RM, Kuppermann N, Homme JL, Kharbanda AB What is the effect of a decision aid in potentially vulnerable parents? Insights from the head CT choice randomized trial. Health expectations, 2020.PMID 31758633