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Paeds Casespain-palliative-and-end-of-life-care

Paeds Cases · pain-palliative-and-end-of-life-care

Hold the goals-of-care conversation for withholding and withdrawing life-sustaining treatment — OSCE

OSCE communication station for withholding and withdrawing life-sustaining treatment: open the conversation, explore understanding, make a clear recommendation, address fear of abandonment, and agree a documented plan.

osce communication and shared decision-making
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Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
A six-month-old infant with severe hypoxic-ischaemic encephalopathy remains ventilator-dependent after a catastrophic out-of-hospital arrest. The intensive-care team judges that continued invasive support is not in the child's best interests; the parents ask that "everything be done".

Candidate brief

You have eight minutes to open a goals-of-care conversation with the family in this scenario. Explore their understanding, hopes and worries; explain the clinical recommendation in plain language; address fear of abandonment; and agree next steps including documentation and support. [1][2]

Key teaching and communication objectives

Start with listening. Ask what the family already understands and what they are most afraid of. Name the clinical situation honestly without jargon. Make a clear recommendation grounded in the child's best interests rather than asking the parents to choose from an unsupported menu. [1]

Explain that limiting non-beneficial life support is not the same as stopping care. Symptom control, presence and dignity intensify. Invite questions, allow silence, and check back for understanding. If disagreement remains, explain second opinion and ethics pathways without threatening abandonment. [1][2]

Close with a concrete plan: who will do what by when, which treatments continue, which are limited, how symptoms will be treated, how siblings will be supported, and when you will meet again. [2]

Marking domains

Suggested marking domains (formative)
  1. Rapport and exploration of understanding
  2. Clear best-interests recommendation
  3. Distinction between limiting life support and withdrawing care
  4. Shared plan and documentation
  5. Family and sibling support / escalation if disagreement
[1]

References

  1. [1]Larcher V et al. Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Arch Dis Child, 2015.PMID 25802250
  2. [2]Himelstein BP et al. Pediatric palliative care. N Engl J Med, 2004.PMID 15103002
  3. [3]Dworetz AR et al. Withholding or withdrawing life-sustaining treatment in extremely low gestational age neonates. Arch Dis Child Fetal Neonatal Ed, 2021.PMID 33082153
  4. [4]Gillam L et al. How Could Parents' Reasons Shift a Refusal of Treatment into the Zone of Parental Discretion?. Am J Bioeth, 2025.PMID 41108243