Paeds SAQs · pain-palliative-and-end-of-life-care
Care in the last days of life — formative SAQs
Formative SAQs on care in the last days of life covering definition, classification, bedside pathway, red flags, documentation and family support.
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Target exams
SAQ 1 (10)
A four-year-old with progressive metastatic solid tumour is now bed-bound, taking only sips, with irregular breathing and increasing periods of unresponsiveness. The family wish to remain at home if symptoms can be controlled. [1] [2]
a) Define the core problem in one sentence and state the governing ethical standard. (3 marks) [1]
b) Outline the classification axes you would use and why they change management. (3 marks) [1] [2]
c) List the red flags that would force senior, ethics or court escalation. (2 marks) [1]
d) Document the key elements you would write in the clinical record after the family meeting. (2 marks) [2]
SAQ 2 (10)
The family remains uncertain and a junior colleague asks whether stopping a treatment already started is ethically worse than never starting it. A sibling is present and distressed. [1] [3]
a) Explain the ethical relationship between withholding and withdrawing life-sustaining treatment. (3 marks) [1]
b) Describe how you would structure shared decision-making so parents are not left to decide alone. (3 marks) [1] [2]
c) Outline immediate symptom-control priorities while the decision is being made. (2 marks) [2]
d) Describe age-adapted support for the sibling during this phase. (2 marks) [3]
References
- [1]Himelstein BP et al. Pediatric palliative care. N Engl J Med, 2004.PMID 15103002
- [2]McNeilly P et al. The use of syringe drivers: a paediatric perspective. Int J Palliat Nurs, 2004.PMID 15365495
- [3]Wee B et al. Interventions for noisy breathing in patients near to death. Cochrane Database Syst Rev, 2008.PMID 18254072
- [4]Greenfield K et al. A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life. Palliat Med, 2020.PMID 32228216
- [5]Fischer H et al. Physicians' opinions on and practical experiences with palliative sedation therapy in children: an international survey in five European countries. BMC Palliat Care, 2025.PMID 41102707
- [6]Papadatou D et al. Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making. Palliat Med, 2021.PMID 33307990