Paeds Vivas · professional-practice-and-evidence
Family-centred and child-rights-based care — viva
Branching structured oral on family-centred and child-rights-based care: the four core concepts, the four UNCRC principles, Hart's ladder, bedside delivery, and the boundary between family autonomy and safeguarding.
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Target exams
Stem
Examiner-led viva on a family-centred, rights-based encounter in a complex child. [1]
Examiner: The parents ask you not to tell the child what is happening. How do you respond? [5]
Strong answer: I explore why — usually fear — while holding the child's right to accessible information and to be heard. Withholding information "to protect" breaches the information-sharing core concept and the child's rights. I offer to share age-appropriate honest information with the child together with the parents, so the child is not left frightened and alone. [1] [5]
Examiner: Name the four PFCC core concepts and the four UNCRC guiding principles. [1]
Strong answer: The four core concepts are dignity and respect, information sharing, participation, and collaboration. The four UNCRC guiding principles are non-discrimination, the best interests of the child, survival and development, and the right of the child to be heard. The first set tells me how to partner; the second tells me why the child is owed it. [1] [5]
Examiner: The parents speak limited English. How do you handle communication? [9]
Strong answer: I book a professional interpreter for every substantive conversation, and I never use the child or a sibling as interpreter for high-stakes information. I share information in plain language and check understanding with teach-back rather than trusting a nod. [9]
Examiner: How would you grade the child's participation here? [12]
Strong answer: Using Hart's ladder, manipulation, decoration and tokenism are not participation. For a nine-year-old, genuine participation means assigned-but-informed at minimum — I tell her in concrete terms what will happen and ask her view, weighted to her developmental stage, and I record her own views in the notes. [12] [6]
Examiner: What is the commonest failure mode of family-centred care as policy? [10]
Strong answer: The implementation gap — endorsed policy that never reaches the bedside, worst where acuity and under-resourcing press hardest. Knowing the policy is not the same as practising it; the fix is concrete bedside moves like greeting the child by name first and recording her views. [10]
Examiner: One key pitfall to avoid? [5]
Strong answer: Letting "the family will decide" silence the child's own voice. The child holds rights independently of the parent, so I ask her directly and weight what she says, while still partnering with the family. [5] [12]
References
- [1]COMMITTEE ON HOSPITAL CARE, INSTITUTE FOR PATIENT- AND FAMILY-CENTERED CARE Patient- and family-centered care and the pediatrician's role. Pediatrics, 2012.PMID 22291118
- [5]Goldhagen JL, Shenoda S, Oberg C, Mercer R, Kadir A, Raman S Rights, justice, and equity: a global agenda for child health and wellbeing. Lancet Child Adolesc Health, 2020.PMID 31757760
- [6]Quaye AA, Coyne I, Söderbäck M, Hallström IK Children's active participation in decision-making processes during hospitalisation: An observational study. J Clin Nurs, 2019.PMID 31430412
- [9]Shields L, Nixon J Hospital care of children in four countries. J Adv Nurs, 2004.PMID 15009350
- [10]O'Connor S, Brenner M, Coyne I Family-centred care of children and young people in the acute hospital setting: A concept analysis. J Clin Nurs, 2019.PMID 31099444
- [12]Alderson P, Sutcliffe K, Curtis K Children as partners with adults in their medical care. Arch Dis Child, 2006.PMID 16399782