Psych MEQs / SAQs · Intellectual disability — capacity and supported decision-making
Capacity and supported decision-making in ID (MEQ)
FRANZCP-style MEQ on decision-specific capacity in intellectual disability, supported decision-making, UNCRPD Article 12, guardianship principles, and pathway branching for elective surgery consent.
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Target exams
Model answer
Reveal model answer
(i) Definitions. Decision-making capacity is a clinical, decision- and time-specific judgment about whether this person can make this treatment choice now after material information and supports. It is not a global ID label. Legal capacity (UNCRPD Article 12 language) is equal recognition before the law and the right to exercise legal agency, with access to support and safeguards. Clinical mental capacity tests and legal capacity principles are related but not identical; exams expect awareness of the tension without inventing local statute text.[1][3][4][7]
(ii) Four abilities and supports. Understand relevant information; appreciate the situation and consequences as applied to self; reason (use or weigh) options; communicate a choice. Adapt with Easy Read/pictorial tools, plain language, chunking, extra time, quiet environment, return visits, and a trusted supporter who assists without answering for him. Many people with mild–moderate ID retain capacity for concrete health decisions when disclosure is accessible.[2][5][6]
(iii) Assessment sequence and documentation. Name the decision (elective laparoscopic cholecystectomy). Speak to him first; position mother as potential supporter, not automatic decision-maker. Optimise communication; disclose condition, procedure, benefits, material risks, alternatives including no surgery. Teach-back each ability; explore fear of hospitals and voluntariness. Document information format, supports offered, ability findings with quotes, conclusion for this decision today, and review plan. Do not accept maternal "I always sign" as legal authority without checking for a lawful substitute order under local legislation.[1][5][7]
(iv) SDM vs substitute and guardianship principles. Supported decision-making keeps him as decision-maker with tailored help. Substitute decision-making is another person/body deciding under a lawful framework when capacity is absent after reasonable supports. Guardianship principles: least restrictive; limited domain and time; residual autonomy; will and preferences; regular review; safeguards against conflict of interest. Prefer limited orders over plenary convenience.[3][4][5]
(v) Management branches. If capacity present after supports: respect informed consent or informed refusal; document carefully. If capacity absent and elective: delay if safe, enhance capacity with further education/supports, reassess; if decision still needed, use lawful limited substitute/guardianship or best-interests / will-and-preferences-guided process under local law. Emergency necessity pathways apply only if serious imminent harm cannot wait — not routine elective cholecystectomy. Mental health legislation is a separate track for psychiatric criteria and does not automatically authorise surgery. No invented section numbers.[1][4][7]
Common errors
Equating moderate ID with automatic incapacity; accepting parental signature without lawful basis; skipping Easy Read/teach-back; inventing guardianship section numbers; treating elective surgery as emergency necessity; writing a global "lacks capacity" label; ignoring fear and voluntariness; speaking only to the mother.[1][5][7]
References
- [1]Appelbaum PS Clinical practice. Assessment of patients' competence to consent to treatment N Engl J Med, 2007.PMID 17978292
- [2]Appelbaum PS, Grisso T Assessing patients' capacities to consent to treatment N Engl J Med, 1988.PMID 3200278
- [3]Werner S Supported decision-making and personal autonomy for persons with intellectual disabilities: article 12 of the UN convention on the rights of persons with disabilities J Law Med Ethics, 2013.PMID 24446938
- [4]Szmukler G "Capacity", "best interests", "will and preferences" and the UN Convention on the Rights of Persons with Disabilities World Psychiatry, 2019.PMID 30600630
- [5]Sullivan WF, Heng J, Bach M, et al. Supporting adults with intellectual and developmental disabilities to participate in health care decision making Can Fam Physician, 2018.PMID 29650742
- [6]Cea CD, Fisher CB Health care decision-making by adults with mental retardation Ment Retard, 2003.PMID 12622524
- [7]Buchanan A Mental capacity, legal competence and consent to treatment J R Soc Med, 2004.PMID 15340019